Progressive Supranuclear Palsy (PSP) is a rare brain disorder, affecting about 1 in every 100,000 people over the age of 60. As its name implies it is a chronic disease that gets worse over time, while damaging certain parts of the brain, mainly influencing eye movement. PSP has an average life expectancy of seven to ten years from onset, while there is considerable variation among patients of occurred symptoms and rate of progression. There is no specific test to diagnose PSP, and pet scans are normally used to eliminate all other conditions before arriving to a conclusion for PSP. According to NHS, while the incidence rate in the UK is just about 5 in 100,000 people over 50, the actual number might be higher due to frequent misdiagnosis of PSP as Parkinson’s disease.
Most Frequent – Main Signs & Symptoms:
1. Early Symptoms may include:
- unexpected falls & loss of balance
- eye problems – difficulties focusing, looking up and down, annoyance of bright lights
- behavioral &/or cognitive changes – depression, apathy, etc
2. Progressed symptoms may include:
- problems with swallowing & speech
- difficulties walking & extended falls
- deterioration in thought activities – lack of concentration & forgetfulness
- increased eye problems
The cost associated with this disorder shows a huge escalation, when compared to different scale groups and progression. A study showed that, especially in Germany, the cost from the lower to the higher scale group spiraled about six times, leading to a mean cost of higher than 56,000 euros for a period of six months. Nevertheless, medication takes only a small proportion of the cost, while inpatient and unpaid care from family/friends are the highest social and economic expenses.